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My name is Terri Biloski on November 10th, 2012 I ran 161 kilometres (100 miles) to raise funds and awareness for Huntington’s disease.  I decided to set up this fundraising event as my late Grandmother and Mother had / have Huntington’s disease.  I may also have this disease,as it is hereditary, and I have a 50% chance of developing Huntington’s.  As long as I’m able, I’d like to do what I can for my family and those effected by this disease worldwide.  There are currently no treatments for HD and we need to find a cure!

But my adventure and fundraising efforts didn’t stop there.  We raised over $8,000 so far.  So we’ve upped the goal and will be keeping it going for 2014.  Please check out the website or follow my adventures on Facebook at and please help support this cause in whatever way you can.

My Grandmother, Bernice, was an energetic fun woman full of life prior to the onset of the symptoms of Huntington’s disease. The disease began to show itself with a tremble of the hand or a forgotten name or place.  Over the years her brain cells continued to die, the trembling got worse and her words began to slur.  Eventually my Grandmother was confined to her chair or bed without the ability to take care of herself and without the ability to communicate with her family and friends.  My Grandmother was incapacitated to the point where she was no longer there but rather a shell of a magnificent woman.  Her eyes blank lacking emotion and the smile we looked forward to for so many years no longer came across her lips when we entered the room.  My grandmother was gone.  I run for her!

My mother, who is also a cancer survivor, is now in the early stages of HD.  If we do not find a cure or treatment she will follow the same road as my Grandmother. If something isn’t done I will again watch as the emotion leaves her eyes and her beautiful smile no longer crosses her lips.  I run for her!

The statistics say that 1 in every 10,000 will develop Huntingtons disease.  The statistics also say that there is a 50% chance that a child of a parent with HD will also develop the disease.  Currently there are thousands of people across this country and many others that are fighting HD as it ravages their brains and slowly shuts down their bodies. There are also many more that have been touched by this disease as it affects a loved one or close friend.  I run for them!

You could say that I’m a bit of a running nut, as I know my friends and family hold that thought.  There are fewer than a dozen days in the year that I do not run. I run to get to work; I run in the evenings to coach and help people get into running; I run with my friends to keep in touch; I run local and international races to keep my competitive passion alive: Lastly, I also run from my fears that some day I too will develop this horrible debilitating disease and my children will watch as the love I have for them leaves my eyes and the smile fades from my lips.

Please join me in helping to find a cure and new treatments for Huntington’s disease. Join me at one of the events detailed on this site and show your support. You can also give generously to the Huntington’s Society of Canada by donating online or by signing a pledge form.  Visit for all the details and how to participate.

We can run together and make a difference! 

Terri Biloski



RUN161 Route

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